Weekly Blog No 47 – The Struggles of Daily Life

Blog 47

Life is becoming normal in the UK and it’s hard to believe we ever lived in Canada. We had an email from a Canadian friend last night and she said it was the long weekend this coming weekend.  I can’t believe how easy it is to forget the long weekends as they are not applicable in the UK. Nevertheless the UK does give its employees more annual leave.

I did miss writing my blog last week because I didn’t have the energy. I don’t seem to have the oomph to even read my fellow blogger’s entries, so please don’t be offended as I will catch up at some point. I am usually quiet active on social media and that’s gone to pot too. I have also resorted to granny naps in the afternoon and my little Lottie seems to enjoy them too. She is my little snuggle fluff ball.

Carcinoid cancer is so unpredictable and even though some similarities between patients, we all have a different journey. We learn from each other’s experiences, gain knowledge and sympathize with each other. It is a community of both love and support. We all empathise when someone goes through a troublesome time and provide support when needed.

I am a fact person and in order for me to understand something, I need all the information. This is how I handle my disease, if I have an explanation whether it is good or bad, I’m ok. Where does that come from I wonder, I don’t know if it is a skill that I have established through my working life or just a learnt behaviour. In Canada, I had a GP who understood that about me, he would always give me the information. Thank you Dr K. As for the UK, I am still learning all the time and I am not in a comfortable place about my illness as yet. However it is early days and I am still in the transition period of care. I’m not sure when that transition period is going to end at the minute. Patience Kat  😊

My symptoms are causing me so many problems, preventing me from doing things and incurring me being stab with very sharp implements. Just this week, I had 3 needles by the District Nurse, a cancer butt dart and bloods taken by the Specialist Nurse and to add to the mixture, I have to stab myself with rescue shots to aid my symptoms. I’m not going to lie, it’s hard to be upbeat when you are struggling and then I get a reality check on life. I have to remind myself that I am still here and surrounded by love ones. I would imagine everyone is different and it is ok to have good and bad days. It is also acceptable to scream, laugh and cry, when you need too. The one thing that does make me happy instantly, is J my husband. He can make a blue day sparkle every time, with his personality. His Scottish humour is the best medicine ever and if I could bottle it to share, I would to make everyone’s day sparkle too.

Hopefully yesterday, I was the reason for discussion in the MDT meeting led by my Oncologist. I have many issues that have occur both in Canada and the UK that need to be addressed. I am waiting to hear the feedback and to see if I was even discussed in this particular meeting. My symptoms do seem to be progressing so my question is,  is my cancer advancing or can it be managed. My medication undoubtedly gives me the impression of advancement as it takes over my bedside table and refrigerator due to its excessive amounts. I guess only time will tell.

I hope everyone has a good week J

 

 

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