Weekly Blog No 124 – A Hard Week/Death


This week has been a hard week on so many levels. For a while, I have been experiencing problems since my last surgery in Nov. I suspect I have a partial bowel obstruction. I knew at some point I would get another bowel obstruction from either scar tissue or dandelions (tumours) but just not this soon. My recent bloods have recently shown high and low level readings, therefore my bloods etc were retested on Friday.

When speaking to my GP/FP about the situation he said “the surgeon wouldn’t operate again”. It’s not the first time I’ve heard such words and I’ve defined the odds. Nevertheless I think my surgeon would as he appreciates complicated cases and also the challenge. In reality the GP/FP and his thought process is right because I’m sure my abdomen looks like a plate of spaghetti with a few dandelions(tumours) thrown in for a pop of colour.

You all know my last op in November was not very pleasant for me and I am in double digits were op’s are concerned. I’m still super sensitive were any medical treatment is given to me, which involves a degree of pain. This week, I had hip injections to eliminate pain and boy did it hurt. I came out of the medical facility saying to Mr Zebrakat “why do I put myself through this”. The answer to my own question is, I have no choice. If I want to sleep at night, it has to be preformed. I’m also waiting for my surgeon/team to return my call, regarding a course of appropriate action to be taken. Let’s see what develops over the next couple of weeks. In the meantime, I have my PET scan the beginning of May.

Since the last op, my abdomin feels slightly distorted and even the open wounds have healed larger than a normal scar line. At this moment, I don’t necessary like what I see, nevertheless they are survival scars and no one is going to see them. After all, it doesn’t really effect me as they are just scars at the end of the day. Furthermore the scars are not on show for all to see, therefore I do embrace them as survival.

On a positive note, I have lost a lot of weight since my last op (that could be considered as good or bad thing). Now to me its a blessing in disguise unless told otherwise as I’m going back to my original shape. Obviously when the undetected cancer was growing, my body was just inflating from hormones secreted from the dandelions. Even back in the day my physical trainer from the army would see me twice a week to torture me. He could never understand why I wasn’t losing weight from the exercise regime I was carrying out. It was always an unresolved puzzle and I consequently learned to live with the matter of contention. Regardless of feeling ill at times, people nowadays can’t believe how good I look. They are seeing a slimmer me and I’m seeing a sick person. The biggest thing they notice is the weight loss, in spite of me living with ongoing daily symptoms. Nowadays my clothes can be purchased off the rack without even having tried them on. It is an excellent feeling whether you are sick or not.

This week, I was informed of two friends passing away from cancer. Both suffered from different cancers, yet they were both so brave in their own right. It’s been rough week emotionaly for me and their families. One of my friends, even though we had different cancers we had similar symptoms in some respects. It was like I was opening up the suppressed emotions of death. Don’t get me wrong I am realistic, I knew one day that I would die of the disease, still I was living in the moment. I think these emotions were brought forward due to my friends passing from the disease and me dealing with more symptoms with no possible outcome but death in time.

No one wants to be faced with death. I’ve heard the phase used before, we could all die tomorrow crossing the road etc etc still bottom line is that its unexpected, with cancer you’re dying slowing and not all of a sudden. Yes we all know we are going to die one day, however we don’t know when or how, it’s the unknown. Please don’t be alarmed I don’t think I’m there yet, in spite of medical aid, I know deep down I’ve exhausted that. Therefore organs have to start failing to work efficiently. I could use another one of my nine lives and live for years, who knows. Under the circumstances it would be normal to think this way. I’m sure I will again and again, nevertheless it’s gave me a kick in the butt to get my paperwork in order. I did have anything in order in Canada but I haven’t completed everything in the U.K.

Cancer and death thoughts are always going to dovetail with one and another. Even patients who are cured with cancer will have had these thoughts somewhere throughout their journey. People who haven’t had cancer and who know of someone who’s had cancer will immediately think death. Bottom line the thoughts are unavoidable.

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Weekly Blog No 10 – Overcoming Reality.

True Quote

True Quote

This weeks challenge is overcoming reality of the situation and remaining focus.

A week today, I went to see my Oncologist to discuss the way forward. This was going to be a difficult meeting with my Dr due to my recent op and its findings. When I had my liver resection in January, I certainly didn’t expect to be back in hospital in May for an appendix op. I just wasn’t ready for further a operation, nevertheless I was truly sick of being a patient. 4 operations in 14 months, now I’m not looking for sympathy but the reality is when you have cancer you have to be prepared to accept the unexpected as you don’t have control over the situation.

This appointment was to discuss the facts of the current situation, the Oncologist informed me that my cancer had spread and net tumours were located in the mesoappendix. He informed me that the disease was progressing quiet rapidly, which I then asked “how long do I have”. He told me that I have years rather than months but it would be a good idea to start actioning my bucket list immediately as my health is deteriorating and I might be too sick to do activities in the not to distant future.

This was shocking news and no one ever wants to think they are dying especially so young. My immediate thoughts were, how do I tell the family and will I ever work again. My family are both in the UK & Ireland so not really on my doorstep and I do miss work terribly. It’s the 1st time, in 16 months I said “why me” and “how did this happen”. During this week I was experiencing the angry phase too ” why did doctors not detect my symptoms sooner” and ” why was I only diagnosed at Stage 4″ the final stage. I have since calmed down, nevertheless those feelings may come back again with many tears.

The bucket list, I gave it some thought previously and have considered things in the last week including taking ownership of some goldfish. My husband bought me the goldfish this week, which I will discuss further in next weeks challenge. I have came to the conclusion that a bucket list is so final and could be too much pressure. Why put pressure on myself when trying to deal with an illness just makes no sense to me. I will wing it, I will attempt to do things when I can and just make the most of life. This would not be everyone’s decision but Ive been very fortunate in life to have travelled and reach my own personal goals. I will continue to be the proactive person I am as long as my health allows me too. Live life to the fullest is my motto.