Weekly Blog No 92 – Overview of 2016

It’s been a few weeks since I’ve written a blog due to ongoing health issues but here’s an overview for 2016.


Been back in the UK for over a year now, we’ve got back into the swing of life. I have to admit my heart is still in Canada but I’m glad to be back. I haven’t driven for a year due to my ongoing symptoms, a personal choice but you never lose the skill of driving. Things can be easier in the UK, shops can be reached by foot or local transport. Food shopping can be delivered to your home. Medication can be delivered to your home by pharmaceutical companies. Basically most items can be delivered to your home nowadays by a simple click.

Friends & Family

An enormous thank you to all the lovely people who have been there for me & Mr Zebrakat. Your kindness however small or big, blows my mind and please know that I am truly grateful. I know nowadays I’m not the most proactive friend but if you know me well enough, you know that I care but my illness limits me. Consequently relying on people visiting me if they want too. Thank you for those people who have made that effort, it always brings a smile to my face.

Lottie (dog)

Lottie has settled into her new house, she loves the garden and her local walks. Lottie has clearly adapted to moving and hopefully this will be her last move.

New Home

Well we did it, we bought a home in a lovely town in Northamptonshire. A beautiful town retaining local facilities in walkable distance, which is a rarity these days.  The house needs  some work to meet our standards but we will get there. The construction plans are being drafted to be tweaked. However I was able to have Christmas dinner here for family and it was a lovely day.


Well what can I say, as time goes by my symptoms seem to progress. Even though I have some symptoms under control, there are more and more creeping upon me. This year, there has definitely been more bad days than good and life without a cocktail of drugs would be unbearable. There has been days were my pain relief has gone out of sequence due to one thing and another, no person wants to live with that pain, it’s insufferable. Let’s hope in 2017 there will be more good days than bad.


I was trying to concentrate on hobbies last year. Cooking skills are still improving and still learning to try different ingredients. Reading has been non stop, I do love historical fiction. I’ve tried out new authors this year and I will continue that.  A friend bought me an OK Magazine subscription, therefore I’m able to keep up with showbiz gossip. Music, there is not day that goes by without music, love love love music. I also did some online courses when I was well enough to occupy my mind.

Theatre & Movies

I’ve managed a couple of shows and a few films. Attendance is not at peak times and always needs to be planned in one way or another. Going to see a movie is always therapeutic,  it’s  like adding normality to your life.

Overall a successful year and I will look forward to 2017. Freedom is going to be my goal this year. I wish everyone a Happy Healthy New Year.


Weekly Blog No 76 – Phyiscal and Mental Scars. 


As a cancer patient you are left with both physical and mental scars. Everyone deals with these scars differently and for me I have evidence of both. Firstly I don’t have tattoos but you could say my chest and back is considered to be like a scar sleeve.  I have various sizes and all of them are of the same colouring. There is no particular art or precision taken when cutting the skin by the surgeon but why would they to be honest.  I do have, a cute dotted line on either side of my largest scar, were the staples were taken out. I think I had 50 plus staples to my longest scar.

Am I bothered about my scars, my answer is no because they all tell a story. Do they look pretty, maybe not to some people but who cares. The fact is, I do have them and each one has improved my well being at some point.

That’s the physical scars let me discuss my mental scars. My mental scars are not from the cancer diagnosis but from medical procedures undertook over the years. I’ve had two or three episodes that have showered me with fear. I always go into these procedures with my head held high but really I’m a nervous wreck. I never fear the outcome/diagnosis it’s the procedure that has me every time.

Let me explain, in approx 2006 maybe earlier I had a colonoscopy and for some reason I nearly touched the ceiling with pain. I don’t know of anyone as yet that has experienced pain with this procedure on the bowel that hasn’t been operated on.  This first mental scar has been taken with me on all future medical procedures.

Here’s the story of my biggest mental scar and the one that still haunts me to this day. Let me explain the JP drain, see the attached photo below of a Jackson Pratt Drain

imageI’ve had the closed drain option twice, the tube is fitted through a hole in your skin to the operated area. The balloon section hangs down from your body draining fluid. No one likes having plasters/band aids removed from their skin but this is a whole other level of pain when removed. Imagine this, I’ve just had major surgery so I am pain free, I’m also on morphine etc so surely this won’t hurt. “They pull the drain out whilst you are awake” the nurse says, I replied “its embedded inside my abdomen”. The nurse continues” it’s ok I will just tug it and then it comes out”. As I had been through so much already I thought this is a piece of cake. Ohhhhh how I was so wrong, two nurses standing by my bed ready to do the act.  The first nurse pulled the drain and I felt like my insides were being ripped out, when she replies “it’s stuck” she then talks to the nurse station, when the head nurse says” don’t worry just pull it harder”. Hello I’m still here and very awake even after another dose of morphine. The second nurse grabs the drain to pull, she holding on to the drain like she’s in tug of war race.  By this point, the other nurse is holding my hand, what the hell. OMG the pain, when she pulled the drain it was horrific. I said never again, oh I was wrong there was another one when I had my liver resection and knew exactly what to expect. This time they injected the site in order to lessen the pain from my last experience.  That didn’t help me either to be honest. The drain experience has made me very apprehensive about every procedure since.

Last mental scar is my liver biopsy, I had this procedure just after my spine surgery, #3  and I was recovering in hospital, feeling ok and on the mend. By this time, I had so much fear from my first JP drain, everything I was going to have done was deemed to be on that pain level. I’ve figured I have become the most oversensitive patient due to my JP drain experience.

Waiting for the biopsy was making the whole experience worst, I then had the screens in front of me showing the tumours so I was going to witness the core samples. It just added to my fear and I was awake again but given a local anaesthetic.

Are you kidding me, the pain was up there, trust me. No one prepares you for that clicking noise, when the core sample is taken out and the pain after.  When I got back to the ward, they had to do me a cocktail of drugs for the remainder of the day to ease the pain. The following morning I was ok again, like it never happened.

Therefore scars are not always visible to the eye but can carry emotions that no one can see, only you. It’s not just cancer and treatment that you have to deal with, it’s a whole lot of other things too.  I’m sure many of us can relate to this in one way or another.

Have a great day 😄