Just before Christmas I went to London for more scans etc. Although my symptoms had been a mixed bag since stopping treatment, I was carrying on regardless. Subsequently I also tried to improve my daily quality of life. I went vegan at the end of October and Mr Zebrakat came along for the ride with no expectations. Believe me or not, we are both enjoying the change of diet. We are both benefiting from the change in one way or another, yet nothing can stop the pain but medication (Morphine). Fatigue and nausea etc can knock you for six too but that’s cancer for you.
On the 27th Dec, my Oncologist called me at home to inform me that my latest scans revealed more growth. Well that’s a surprise NOT. 😂 My Oncologist intends to commence PRRT in mid Feb. I’ve been chasing this treatment for over a year and now it’s finally happening.
How do I feel, well it validates my symptoms and concerns with my body. The specialised treatment has had some amazing results with Net patients. Remember this treatment is not a cure but can possibly extend your quality of life. This is my final trump card, hopefully it’s the best hand I have.
I had a colonoscopy yesterday only for the Doctor to take 8 biopsies. I could see that I had additional growth in the colon. It was only 2 yrs since my last operation on the bowel.
As I was recovering from surgery last year on a special birthday. My husband took me to London this year to be a tourist for a couple of days.
We experienced some amazing food, indulged in breakfast at Harrods, saw the Thriller Show and visited a couple of museums. We have spent so much time in London on medical visits and never participate in tourist delights.
Hamish is a year old this month. Its hard to believe my ginger tom has been with us nearly a year. He’s so content with us and Lottie. He loves to hide behind walls or furniture to jump out on Lottie and then the big paw comes out. There is other times when they are kissing each other. The photo above, I found him in my hand basin, he’s never done that before. The photo below is the love they feel for each other.
I lost an Aunt this month who was going to be 90 later in the year. She was an amazing woman, who had an interesting life. She was born In Ireland but spent most of her life in the U.K. She was 1 of 8 siblings and had 5 children in her family.
It was her time to leave us and to be reunited with her closest sister Auntie N. I’m sure they had a lot to discuss over a nice cup tea and a slice of cake. RIP Auntie M.
The house renovations are starting to take shape. We provided a beautiful sized bathroom. Created a walk in wardrobe for our clothes etc. Additional storage for books etc in the hall.
The photo is only a small section of the wardrobe, it’s actually 4m long. I designed the wardrobe and Mr Zebrakat & my brother built it.
We are currently snagging the loft room(Office), 2 bedrooms and the bathroom on the first floor before making big changes on the ground floor. We have achieve a lot already, ripping the house up to its bear bones. Let 2020 make the ground floor spectacular.
This was a fantastic month because I met fellow cancer friends K & H and their husbands. We decided to meet centrally due to my problems, therefore we met in Stratford Upon Avon, Warwickshire.
It was an exceptional weekend with excellent food and good company. We intend to do something again this year but H and I are currently having PRRT treatment. I will blog and update over the next couple of days.
Ciao a tutti
We were in Rome this month for the first time in our lives. OMG everyone should go. You have everything in this city, weather, food, architecture and history.
We were going to surprise our American friends who are like family. They are two very amazing people with big hearts. We gelled with each other as soon as we met. The surprise was priceless and a memory we will remember for ever.
This was the month of hospital appointments and visits. Pain was revealing itself in various locations of body. My spine was even getting in on the act but I will blog about that separately.
We went into Kettering, Northants one day and found this amazing restaurant that serves great food. The building interior is so amazing with the perfect ambience. It’s very laid back and has a mixed demographic.
Lottie become 9 years old, it’s hard to believe to be honest. She’s more clingy than ever. I also feel she knows when tumours are having the time of their life inside my body. She tends to sit on the exact spot. She’s such an intelligent dog and I can’t fault her. She’s honestly helped me through my illness.
As I’ve been struggling with symptoms, I’ve decided to go vegan. I do have an allergy to cows milk anyway so 70% of the time I been having alternative dairy products anyway. Mr Zebrakat & I both started together then someone said to watch Game Changers on Netflix. Although I had made the decision to become vegan prior to the programme. The programme definitely opens up your mind.
However being vegan definitely makes me avoid cows milk in products. I feel we have both benefited from the change of diet. Not only does it have an impact on our health, we feel we are contributing to animals and the environment.
There is so many supermarkets doing vegan or plant based food to substitute meat/fish products. Restaurants nowadays are providing vegan menus with fabulous choices. I personally don’t miss meat etc and feel that I’m making a small contribution to animals and the environment including my health.
This month we went to a stunning wedding in Cheshire. J the bride is the daughter of my best friend. I have known J since she was a small child and she’s grown into a beautiful woman & caring mother. We never expected to go to her wedding and we feel completely honoured to be invited. It was a stunning day and a wedding never to be forgot. J married the handsome R, her soulmate and I’m sure they will be happy forever. Congratulations to you both ❤️
Following a recent scan and some tests results, My Net Consultant telephones me and informs me that I’m about to embark on PRRT treatment in February 2020. I will blog about this separately.
So I’ve been a bit quiet for a while, here’s why. I was having a hell of a time dealing with symptoms from my cancer treatment (butt dart). Back in end of April we decided to stop the cancer treatment to see if my symptoms would improve. Overall they have to be honest giving me a better daily quality of life. Nevertheless it’s not perfect, as my pain is now emphasised more. On top of that I’m dealing with spine pain and nerve pain. I have good and bad days. Not withstanding the above, there is more bad than good days. Thank god Mr Zebrakat, married me in sickness and health. 😅
Last Monday, I seen my Oncologist who informed me that although I’m stable. I have cancer in my stomach & pelvic areas, liver and peritoneal. Also my spine is lighting up on the scanner but my Spine Consultant already suggested he felt this was the case prior to any cancer scan.
The way forward is continue to stay off the cancer treatment. It was a decision that I tortured myself over before the appointments. A case of what ifs. More blood and urine tests and rescan end Feb beginning of March. In the meantime, I have my other Consultant appointments to attend. Since writing this update, I’ve received a sneaky scan to be done next month.
Life goes on, I’m not on social media as much, I’m trying to do bits around the house, still reading, resting more because of symptoms and I need to get back to my blog. X
Last weekend, Mr Zebrakat and I took a short drive for some lunch. The Biltz Tea Room & Jazz Lounge had been on my radar for a while, therefore I was very curious what the building interior was going to be like.
The Blitz Tea Room is a family run business. The venue is located adjacent to the Kettering Public Library. The name of the venue, obviously gives you a little clue of the theme of tea room. Hence, I was expecting to see some 1940’s memorabilia, dark wood furniture and classic wartime crockery.
Here’s a couple of photos of the venue.
This photo is pointed to the ceiling to try and capture the sky, the planes hanging down and flags etc.
The menu was a ration book with a choice of sandwiches, omelettes and panini’s etc. A vast choice drinks in specialty teas. I took a photo of a page from the menu, which references Vera Lynn and Churchill both 1940s icons.
Mr Zebrakat chose a pot of speciality tea. He was given a special timer, which determines the strength of tea you like. The longer the timer, the stronger the tea. The milk was served in an old fashioned milk bottle. It’s a miniature size of the original size of a milk bottle. This particular size bottle was given to us as children in primary/elementary school. The sugar was served in cubes a wartime ration.
We both chose different sandwiches, which was served with salad & crisps served on cute flowery china.
We then indulged in fruit scone each served with raspberry jam and clotted cream.
Some of the venues memorabilia on the walls and display cabinets.
Although the food was wonderful, it was quite pricey. I would recommend you go and experience it yourself. There was a couple of parties there, clearly celebrating special occasions which is unique.
At the end of May, Mr Zebrakat and I went to Rome for 4 days to surprise our dear friends. Unknown to them, we had been in cahoots with their children to surprise them when they had arrived in Rome from Florence. They had travelled from the USA to explore some of Italy before boarding a Mediterranean cruise. We’ve never been to Rome and knew that if we took this trip we could kill two birds with one stone.
Cakes served on the morning buffet
Street scene outside our hotel
After getting the necessary paperwork to confirm I was fit to fly. I had the tedious task of obtaining travel insurance. I have to be honest it’s hard work and frustrating. Firstly explaining your cancer, as there is too many assumptions made. Secondly being refused by companies that specialise in cancer travel insurance. Thirdly the rip off price that you get penalised for.
We haven’t seen our friends for 11 years. Shocking, I know. Our last meet up was Las Vegas in 2008, which I have to say was an exceptional trip. Time can just pass you by sometimes.
Our friends J & S had organised trips prior to arriving in Italy. Therefore we were happy to slot into their schedule, as it gave me time to rest between our meet ups.
We waited for their arrival in their hotel foyer. When they did finally arrive, we were both trying not to look too conspicuous in the corner. J was checking in and S took a seat. I approached S first and I will never forget as long as I live the surprised look in her face. Then came the hugs, the words to the effect of “OMG, I can’t believe it ” and then tears of joy. J turned around and thought it was a coincidence that we were both in the same hotel until we explained we came to surprise them. U.K 1 – USA 0. It was a fantastic feeling to surprise such a beautiful couple and in a magnificent city. Rome is a very charming european city and has a very unspoilt feeling about it. The city steeps in history and there is plenty to see.
Our hotel was around the corner from the Trevi Fountain and the Spanish Steps. We did an open bus tour for about 3hrs, we went around twice as there was so much to see. Did Mr Zebrakat and I see everything, no we didn’t so we may have to go back again someday.
Thank you J & S for a wonderful, emotional and rejuvenating time.
This weekend I met up with a couple of carcinoid cancer patients and their husbands. I had originally met Kath & Heather through a Facebook support group. Kath & I have been speaking on the phone for sometime and Heather & I have met a couple times at the Royal Free Hospital, London. This was the beginning of zebra tours, our very first one, which we hope to continue and extend to other zebras.
We all agreed to meet up in a central location for everyone, I was the closest because of my difficulties, so thank you ladies, it was huge help. Stratford Upon Avon was our location of choice. Kath came from the North and Heather came from the South and we joined in the middle.
Heathers husband aka Melboy is a fantastic negotiator, therefore he booked our trip and obtained extras for us. A hotel for a night became dinner, breakfast, lunch & drinks for us all and spa treatments for the ladies. The hotel was The Swan, Stratford Upon Avon
We started off with lunch and drinks, which was lovely. The ladies then headed to the spa for foot & leg treatment, arm & hand treatment and head & shoulder. The treatment was a scrub and then massage, it was heaven. It was 20mins for each treatment. The guys went for a walk and a swift drink. We all then went and watched FA Cup football(Soccer) in a pub as Mr Zebrakat and Kath husband Ade are big footie fans.
Just before 8pm we headed for dinner to the Bistro Pierre, where we enjoyed 3 courses, prosecco and coffee. Before heading to the hotel bar for a nightcap. We all had a lovely sleep without our furry animals.
The following morning we all went for breakfast, which wasn’t the best. However do you care when your in good company. We then started walking into the town to see the lovely sites. Amazing & beautiful town, which was holding a artisan market. We all indulged in its delights before saying goodbye to each other. We all had a wonderful time and looking to book another gathering very soon.
Last month, I had a meeting with a gentleman who’s trying to drive awareness of cancer in the construction industry. His father had passed away from cancer and he wanted to give back by starting a new charity.
I had made contact with him to see if I could participate as my mother, as well as other family members and myself have all experienced cancer. I know first hand the devastation cancer has on a family and all that goes with it.
I’m hoping that this charity will be able to advise people affected by cancer, where to obtain the additional support, whether its financial, emotional or physical.
One of the biggest impacts of cancer is the financial burden, no-one is ready for the financial loss that you find yourself in. A loss of income is hard, unless you have a critical insurance policy. Not everyone considers such a policy because of the additional monthly costs, whether you’re employed or self employed, it is something that people should consider.
There are organisations that offer additional support and provide you with the tools to access further guidance or assistance, which you maybe wouldn’t be aware of. For instance, if you are a cancer patient, you’re entitled to free prescriptions. These are little nuggets of information that you may not be aware of, however it’s one less stressful item to worry about. Free prescriptions actually save me a minimum of £1700 a year, which doesn’t include my cancer treatment costs.
Hopefully this charity will endeavour to reach out to both trade people and professionals affected by cancer, provide some onsite medical screening within work time that can be followed up by a GP or Consultant. Promote cancer awareness, especially skin cancer. There is so much this charity could do, therefore I hope that I, can make a difference to someone’s life.