Merry Christmas Everyone.
I will be blogging over the next week including a medical update.
Merry Christmas Everyone.
I will be blogging over the next week including a medical update.
Immediate family have been informed.
Many of you may have read on my personal fb page that I seen a Spine Specialist a couple of weeks ago, who kindly informed me that the cancer had spread to my spine. He had viewed a scan that I had given him from 2 years ago. He has since requested an up to date scan and X-ray.
I went back to see my Oncologist yesterday and what can I say. After sitting with him for an hour, I’ve headed out the door again, for more bloods & urine tests, new meds, more scans asap, referrals to be made to local Specialists and Palliative Care Nurse.
Eight tubes of blood were taken yesterday and urine samples are to follow. I need to discuss the outcome with my GP and hand him a prescription request for medication that costs a lot of money. It’s very likely the GP will refuse to issue the 10 day course medication due to the excessive costs.
How do I feel. In one hand I do understand the process my Oncologist is taking, call it protocol but in the other hand, I don’t understand it, as my body is an enigma machine.
Let me give you an example, my Oncologist wants me to be referred back to my local Cardiologist to control my very high blood pressure. A known symptom for Carcinoid Syndrome/Cancer. He is obviously concerned, which is understandable to get this addressed. Recently my GP has been monitoring my hbp and it has increased my medication twice just lately to resolve the issue,but to no avail. My body tells me when my blood pressure goes high and that the likely cause is tumour activity. Therefore my hbp can’t be controlled because the dandelions (tumours) are secreting hormones to raise my blood pressure.
The medical data acknowledges tumours in various parts of my body but my body enigma doesn’t reveal the full extent. My body has a habit of not revealing the full extent of tumour loading on scans. (remember the grapefruit sized tumour in my last op). My tumour markers have always given me normal readings.
Here’s a question for you, Does the doctor go on medical data or listen to the patient’s body reactions. We all know he has to go by medical data and in the meantime, I will continue to endure endless symptoms and more invasive tests.
I’ve been here before, it happened in Canada and the result was I ended up in hospital. You will hear it here first: I will end up in hospital again because medical data doesn’t reveal the true picture and I will have to undergo additional surgery. These current tests may provide the code to my enigma and I may have to eat my words but let’s see. Subsequently it’s frustrating and I need the universe to help me overcome this obstacle. I’m grateful to all the people in the medical field who have supported me to date but in allow to rant.
Love to you all. ❤️
Well I’ve been with my new human parents and Lottie, my 4 paw sibling for 4 months. I’m now fast approaching 6 months old. Gosh that went quick.
I’ve grown up as you can see, I’m going to be a big tom cat with mighty fine whiskers. My hair is a beautiful thick coat and to touch is like an expensive carpet. My eyes are no longer topaz blue but a sage green. My little peas were done at 16 weeks on the advice of the vet with no complications. I have a microchip and all the annual injections required. I’m on top of my game.
I love my nosh and my human parents are great at feeding me. I will on occasions attempt to rob Lottie of her dried food, which I guess is like eating chocolate to humans. You can’t leave it alone because it’s addictive. My humans parents are on top of that one.
I am fascinated with playing fetch with a ball. I should say it’s a paper ball and I will flick it around with my paw. I can entertain myself with Lottie’s toys too as she doesn’t play really, she likes to snuggle and cuddle all the time.
I like to jump out on Lottie or try and swipe her with my paw. She doesn’t get my playing at all. I will greet her with an Eskimo kiss in the morning when she comes down stairs.
I have been a little naughty at times, I’ve ate through the telephone cable. I will jump behind the tv and try to chew the cables. I have been found in the handbasin in the toilet/washroom trying to get water out the tap. I ripped up my human mums flowers that are in a vase. I’ve flicked off ornaments whilst sitting on shelves. I will flick any pen or pencil within reach. Ain’t I just a bundle of entertainment. I do keep hearing my human mum say “it’s like watching a 2 yr old and he will grow out of it”.
I will venture into the garden like its an obstacle course. I will nip into next doors garden as there is a 3 yr old who loves me and tries to feed me pizza. However I haven’t yet ventured beyond that.
I am super relaxed in my new home. My human parents and my 4 paw sibling Lottie are purrfect.
Once upon a time, there was a girl called Kat who dreamed of travelling the world but she was stuck down with a disease called cancer. How her life changed……
No one can prepare you for life with cancer, it’s an ongoing assault course. I don’t want pity but everyday its a challenge. It’s wasted energy, which I would have preferred to use in my career. Cancer was not my chosen career, however it is a full time job of manoeuvring through symptoms, medication, side effects, appointments and procedures.
My last blog, I did mention there may be more tests between appointments. Subsequently there was, I even had some scans last Sunday, ready for my Oncologist next week. Hopefully he will have a treatment plan, which may involve a clinical trial with PRRT. As soon as I’ve been to the appointment, I will update you within a couple of days.
I’ve also been to see my Neurologist, who would still like to stick a needle in my head. I’ve chosen the less invasive action of increasing my medication for migraines. Sometimes the medication is not so effective that the only solution is a drink of Coke or Pepsi. Don’t ask me why it works but it does.
Let’s move on to more happier events in life. Mr Zebrakat has been awarded a Fellow in the construction industry. There was an award ceremony in London and I couldn’t be more prouder of him. He deserves the acknowledgement for his contribution to the construction industry
Whilst in London, we went to the London Docklands Museum. I will do a separate blog for that visit.
Although going out is a challenge, Mr Zebrakat & I have adapted to my needs. Only now, did I had realise what precautions we actually take to make travel more accessible for me. It’s become the norm for us but there is a degree of planning & organisation. You learn to adapt very quickly and I’m sure it’s the same for any illness.
The story continues……….
This was my Facebook update for family and friends.
Unfortunately I’ve been a little quiet recently as I’ve been suffering with abdomen pain and a suspected partial bowel obstruction. I had a Pet Scan beginning of May, it was first one since last year. I did have a couple of CT scans in Feb, which revealed cancer in the abdomen. Well yesterday I went to the RF to discuss my current problems and the results from the Pet Scan. Although it was a great appointment with my Oncologist, he did kindly tell me “I was a complicated case”, my reply was “I did tell you I wasn’t straightforward”.
Now Im going to tell you the findings from the Pet Scan, I have cancer in the abdomen in various places, however there is something of concern on the left side were I have intense pain. Furthermore, I have additional cancer spread on the liver. Subsequently I will have CT’s to the thorax, abdomen, pelvis and liver in the next couple of days. The Oncologist will have a multi discipline team meeting to discuss my case. I may have to have additional tests before I see him again mid June. The proposal is a tablet form of chemo therapy or a clinical trial of Peptide Receptor Radionuclide Therapy. This will be discussed in more detail, once he sees me again and I will explain it more to you.
My thoughts: Something has to done about the continuous progression, I do find that I’m constantly saying that I have progression to you all in my updates, however the fight goes on. Obviously my 4th surgery last Nov didn’t buy me time like I initially thought, hey ho there you go. If I have this chemo, there’s some nasty side effects that I don’t want to experience and PRRT is the last resort treatment for my cancer. However PRRT can slow down progression so its definitely a bonus. I will keep doing what I’ve been doing and that is trying to enjoy life. Life is so precious.
Sorry I haven’t done personal messages but there’s too many people to do and easier this way. 😍
Love to you all. ❤️
Mr Zebrakat & I have just been on a mediterranean cruise. It was my birthday gift from Mr Zebrakat and we celebrated on the cruise 5 years since my cancer diagnosis.
If you are a sun worshipper, I wouldn’t recommend the month of March to do a mediterranean cruise. Although we were able to wear short sleeves, it was quiet windy and did rain a couple of days.
Mr Zebrakat chose MSC Cruises after we had watched an episode of Jane MacDonalds cruise Channel 5 programme. The cruise was an eight day cruise embarking & disembarking in Barcelona, Spain, however you could have embarked/disembarked at any of the ports. This is the first cruise we have been on were all the passengers have not all embarked and disembarked at the same location. The cruise involved 4 countries in 8 days and 5 ports.
This was the itinerary:
Day 1 – Barcelona, Spain
Barcelona the capital of Catalonia, the best port in Europe to discover the wonders of this vibrant region of Spain. Barcelona is one of the largest cities of the mediterranean coast. Establish the history of Gaudi and Picasso. Immerse yourself in the medieval and gothic architecture.
Day 2 – Marseille, France
Marseille the typical vielle ville (old town) of the French Riviera. Enjoy the old port, Palau’s du Pharo or Notre Dame de la Garde.
Day 3 – Genoa, Italy
This Mediterranean port will amaze you with elegant architecture from the 17th & 18th centuries. Take in the magnificent Cathedral of SAN Lorenzo consecrated by Pope Gelasius 11 in 1118 and completed in the 14th Century.
Day 4 – Civitavecchia, Italy
The port of Civitavecchi is one of the largest in Italy. Amongst the most important monuments to visit is the Fort Michelangelo, built by Bramante in the 16th century, the ancient walls of the old port and the fountain in travertine marble by Vanvitelli. There is a host of bars and restaurants for a taste of seafood cuisine.
Day 5 – Palermo, Italy
The perfect chance to visit the regional capital of Sicily. The port of Palermo displays of Norman art and architecture, Baroque churches and medieval streets.
Day 6 – Valletta, Malta
The fortress city and the capital city of Malta. The city has historical and artistic heritage and over 300 monuments. Beautiful architecture with colourful balconies to houses.
Day 7 – At Sea
Day 8 – Barcelona, Spain
Mr Zebrakat and I only went off the cruise ship in Valletta, which I will blog about next week.
A total of 1798 nautical miles was achieved on the MSC Meravilglia ship. 19 floors, approx 4400 passengers and 1500 crew. 19 passenger lifts, a shopping promenade, thermal spa, water park and the list is endless.
Here is a few photos of the ship.
I recently informed you that I had a scan at the local hospital and I felt the Radiologist was basically blindfolded when writing my report. As suspected he or she was, my Oncologist reviewed the scans and informed me that I still have disease/tumours in the peritoneal, mesenteric and the liver. I know scans can be hard to review sometimes but even I knew I wasn’t out the woods. I must admit, I was hopeful that my previous op had eliminated all the disease from the peritoneal and the mensenteric . Never mind, the dandelions endeavour to take hold of my body but I shall keep attempting to eliminate them if the opportunity arises. I think this ‘Kat’ has nearly exhausted her nine lives.
On the 11th March 2013, I was rushed into hospital in tremendous pain with no suspicion of what was going on. Early that morning I was operated on, and later informed that I had bowel obstruction surgery. The surgeon sat on my bed informing me I possibly had cancer and I would have to wait for the pathology report. That day changed my life, nothing seems more important than family and friends at that moment. How was I going to break the news to everyone. One of the biggest things I’ve had to do in life and it started with Mr Zebrakat. This was the day that I decided to continue to be positive and whilst speaking to the universe, please give me 5 more years at least to achieve some things in life.
Well it was 5 years on 11th March 2018 and I was Genoa, Italy 🇮🇹. Let me explain, last week I went on a Mediterranean cruise, which was a birthday gift from Mr Zebrakat. It was initially booked to go on the day before my birthday so that we could celebrate on the ship, nevertheless my body had other ideas and he postponed the trip until March.
It made me nervous in many ways, even though I was feeling better. I still had issues that were still being addressed via medication. You can take all the precautions in the world but no one day is the same. I could be swinging from the ropes one minute and be considerably unwell within the next 5 mins. I’m sure anyone who has be fine one minute and sick the next will understand the rapid change in health. It’s not ideal but I have learned to live with it and to just take day by day. Mr Zebrakat of course makes everything more bearable and is never agitated or inconvenienced by my health issues. I’ve never known someone to be so chilled and who naturally goes with the flow. I guess Mr Zebrakat has adapted too and is grateful I’m still here. The story could be so so different as many of my cancer friends who were diagnosed the same time as me are no longer here. RIP all of you. 🙏
Unbeknown by Mr Zebrakat, when postponing the trip he didn’t realise that it was my butt dart week. It’s always hell going into it and hell coming out of it. As we had left very early on the Friday morning and my injection wasn’t due until the Monday, the earliest I could have had the injection was Saturday. Oh hell, what am I going to do was my thoughts. I did speak to my dear cousin, who’s a very experienced ER (Emergency Care) Nurse and who occasionally works on cruise liners. She gave me some invaluable advice. This is what I took from our discussion. 1. Make sure you take plenty of morphine with you. 2. If the butt dart was given by the medical team on the ship, it sounded like a lot of red tape. Therefore the responsibility fell on Mr Zebrakat shoulders with my guidance and no precious training of injecting intramuscular. I was a little anxious and of course he was too but he didn’t show it. Superstar ⭐️
I have to say my current nurse is lovely but I can feel the pain and have some blood on occasions from the injection. She has made my easier in many ways, crossing the line to get me assistance, therefore I’m reluctant to let her go.
Mr Zebrakat was so gentle, which is hard to believe when the diameter of the needle is like a nail, maybe a slight exaggeration. There was no pain and no blood and just a sheer relief from both of us. I think now that he’s ok with it, we will have greater freedom and not necessary be committed to being available for my butt dart appointment. Oh Mr Zebrakat, I forgot to tell you, the next one is due Easter Monday when the medical practice is closed.
Now this is the part I’m kicking myself about, I do consider myself to be very well organised. In fact I’m proud of my organisation skills and it’s a quality that Mr Zebrakat will always comment on. Well remember the good advice my dear cousin gave about morphine. Well I failed miserably by forgetting my morphine. This is a lesson for anyone taking medication, you must double and triple check everything. Mr Zebrakat said he never ask me, because he knew I was always so organised. Ha ha not this time and I paid for it too.
When my last morphine was dispensed by the chemist it wasn’t dispensed in original box. Yes it had the appropriate label on the white box but the contents were made up of left over packets. I know that is fine but when dealing with customs etc who have inquisitive minds it could look a little bit suspect. Therefore my plan was to take my morphine in an original box and the contents to be full strips of medication. Makes sense right, but I forgot to do it and brought no morphine. My cousin is most probably saying now, what did I tell you, I know lol. Well I went into withdrawal and tried to manage the pain with off the shelf pain meds throughout the trip. Being the tough cookie I am, I’ve got by but it did prove a couple of things to me. I can stop morphine when needed, clearly not the appropriate way. I’ve done it many times before including my recent visit to hospital, nevertheless I’m always put back on it for pain control etc. Holy smokes!!! when pain is not managed it is hell and withdrawal is diabolical. Lesson to everyone, double check your medication before leaving for a trip.
We knew that this trip, we would treat it like an all inclusive floating hotel. Not necessary get off the ship due to symptoms but enjoy what the ship has to offer and relax. We did theatre shows, fine dined, drank cocktails, enjoyed spa treatments & used thermal spa, watched movies, read books and went to the casino to have a go on slot machines. (We walked out the casino up in money). I will blog about the cruise next week.
I would like to send out a huge thank you London Luton Airport for assisting me with my illness. I managed to go through priority queues through security and the airline. A service they offer passengers who don’t require a wheelchair assistance but have an illness. I did feel a little guilty because I look ok but my symptoms are not. I actually did get a few stares from passengers and I’m suspect people just assumed I was a staff member as I walked passed them. When I got to the cruise ship, I had paid for priority boarding to avoid queues. You know and I know, queues at airports and cruise line boarding is always long and time consuming therefore priority boarding was a great start to my holiday. I do feel a sense of achievement for getting to the cruise and for being on the cruise.
Written whilst sailing across the Mediterranean Sea until next time. Love to you all.X