Weekly Blog No 139 – My Birthday

Copyright © 2019 Zebrakat

I’m falling behind again in my blogs due to symptoms. However I’ve made another birthday, how amazing is that. I have currently reached 5 birthdays since diagnosis, what an achievement.

Last year my birthday was post op, Mr Zebrakat decided to make my birthday this year a little bit more special. He had organised a weekend in London. Although it’s quiet difficult for me, I was up for the challenge. Who doesn’t like a change of environment and to feel normal again.

We stayed in a beautiful hotel in South Kensington adjacent to the museums. The hotel treated us like VIP guests. They also left me a bottle of claret, a gift box of spa products and a nicely handwritten card from the Hotel Manager. The hotel decor was stunning, the cleanliness was immaculate and the customer service was impeccable.

We went to V & A Museum, there is no way you could view all the exhibits in a day. The venue has 145 galleries, therefore an incredible amount of exhibits. From architecture, furniture to sculpture. Well worth a visit and a walk through history.

Copyright © 2019 Zebrakat

On my birthday we went to see a West End show called “Thriller”. A spectacular show of Michael Jackson hits. The resemblance of MJ was unbelievable. The hits just kept coming and coming. The dancing phenomenal throughout the show.

Copyright © 2019 Zebrakat

We also visited the Imperial War Museum, Lambert, an insight of war history. The museum exhibits WWI, WW2, The Cold War and the Holocaust and much more. I’m not sure if the Holocaust exhibit is a permanent exhibition but its anniversary is on my birthday, which I will never forget.

Copyright © 2019 Zebrakat

Copyright © 2019 Zebrakat
Copyright © 2019 Zebrakat
Copyright © 2019 Zebrakat

Copyright © 2019 Zebrakat

One lesson that I had learned from Canada was we don’t explore our own country enough. In my past life, any opportunity for a break away from work. I would jump on a aeroplane and leave the country for sunshine & culture. Clearly forgetting that there is so much to see in the U.K. Canadians are fantastic at exploring their own country. I’m starting to realise now the U.K. has a lot to offer but it’s not always cheap. You need to shop around and grab online deals when you see them. It’s unbelievable that a city break in Europe is sometimes cheaper than a weekend in the U.K.

On our final day, we went to Harrods for breakfast. What a wonderful experience that was, the service was errorless. The food was of the highest quality, served on china. The tea set was silverware. The ambience of the room was art deco with background music of the rat pack. A divine experience on how the other half live.

Copyright © 2019 Zebrakat

Thank you, thank you, thank you to all my family & friends for cards, gifts, balloons and flowers.

To my awesome husband, for making memories, treating me like a queen and always putting me first in life. You are one of kind and I won’t let you forget that.

Love to you all.

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Weekly Blog No 133 – Merry Christmas.

Merry Christmas Everyone.

I will be blogging over the next week including a medical update.

Weekly Blog No 132 – Cancer Update

Cancer Update  

Immediate family have been informed.

Many of you may have read on my personal fb page that I seen a Spine Specialist a couple of weeks ago, who kindly informed me that the cancer had spread to my spine. He had viewed a scan that I had given him from 2 years ago. He has since requested an up to date scan and X-ray.

I went back to see my Oncologist yesterday and what can I say. After sitting with him for an hour, I’ve headed out the door again, for more bloods & urine tests, new meds, more scans asap, referrals to be made to local Specialists and Palliative Care Nurse.

Eight tubes of blood were taken yesterday and urine samples are to follow. I need to discuss the outcome with my GP and hand him a prescription request for medication that costs a lot of money. It’s very likely the GP will refuse to issue the 10 day course medication due to the excessive costs.

How do I feel. In one hand I do understand the process my Oncologist is taking, call it protocol but in the other hand, I don’t understand it, as my body is an enigma machine.

Let me give you an example, my Oncologist wants me to be referred back to my local Cardiologist to control my very high blood pressure. A known symptom for Carcinoid Syndrome/Cancer. He is obviously concerned, which is understandable to get this addressed. Recently my GP has been monitoring my hbp and it has increased my medication twice just lately to resolve the issue,but to no avail. My body tells me when my blood pressure goes high and that the likely cause is tumour activity. Therefore my hbp can’t be controlled because the dandelions (tumours) are secreting hormones to raise my blood pressure.

The medical data acknowledges tumours in various parts of my body but my body enigma doesn’t reveal the full extent. My body has a habit of not revealing the full extent of tumour loading on scans. (remember the grapefruit sized tumour in my last op). My tumour markers have always given me normal readings.

Here’s a question for you, Does the doctor go on medical data or listen to the patient’s body reactions. We all know he has to go by medical data and in the meantime, I will continue to endure endless symptoms and more invasive tests.

I’ve been here before, it happened in Canada and the result was I ended up in hospital. You will hear it here first: I will end up in hospital again because medical data doesn’t reveal the true picture and I will have to undergo additional surgery. These current tests may provide the code to my enigma and I may have to eat my words but let’s see. Subsequently it’s frustrating and I need the universe to help me overcome this obstacle. I’m grateful to all the people in the medical field who have supported me to date but in allow to rant.

Love to you all. ❤️

Weekly Blog No 130 – Hamish

Well I’ve been with my new human parents and Lottie, my 4 paw sibling for 4 months. I’m now fast approaching 6 months old. Gosh that went quick.

I’ve grown up as you can see, I’m going to be a big tom cat with mighty fine whiskers. My hair is a beautiful thick coat and to touch is like an expensive carpet. My eyes are no longer topaz blue but a sage green. My little peas were done at 16 weeks on the advice of the vet with no complications. I have a microchip and all the annual injections required. I’m on top of my game.

I love my nosh and my human parents are great at feeding me. I will on occasions attempt to rob Lottie of her dried food, which I guess is like eating chocolate to humans. You can’t leave it alone because it’s addictive. My humans parents are on top of that one.

I am fascinated with playing fetch with a ball. I should say it’s a paper ball and I will flick it around with my paw. I can entertain myself with Lottie’s toys too as she doesn’t play really, she likes to snuggle and cuddle all the time.

I like to jump out on Lottie or try and swipe her with my paw. She doesn’t get my playing at all. I will greet her with an Eskimo kiss in the morning when she comes down stairs.

I have been a little naughty at times, I’ve ate through the telephone cable. I will jump behind the tv and try to chew the cables. I have been found in the handbasin in the toilet/washroom trying to get water out the tap. I ripped up my human mums flowers that are in a vase. I’ve flicked off ornaments whilst sitting on shelves. I will flick any pen or pencil within reach. Ain’t I just a bundle of entertainment. I do keep hearing my human mum say “it’s like watching a 2 yr old and he will grow out of it”.

I will venture into the garden like its an obstacle course. I will nip into next doors garden as there is a 3 yr old who loves me and tries to feed me pizza. However I haven’t yet ventured beyond that.

I am super relaxed in my new home. My human parents and my 4 paw sibling Lottie are purrfect.

Weekly Blog No 127 – My Life Continues

Once upon a time, there was a girl called Kat who dreamed of travelling the world but she was stuck down with a disease called cancer. How her life changed……

No one can prepare you for life with cancer, it’s an ongoing assault course. I don’t want pity but everyday its a challenge. It’s wasted energy, which I would have preferred to use in my career. Cancer was not my chosen career, however it is a full time job of manoeuvring through symptoms, medication, side effects, appointments and procedures.

My last blog, I did mention there may be more tests between appointments. Subsequently there was, I even had some scans last Sunday, ready for my Oncologist next week. Hopefully he will have a treatment plan, which may involve a clinical trial with PRRT. As soon as I’ve been to the appointment, I will update you within a couple of days.

I’ve also been to see my Neurologist, who would still like to stick a needle in my head. I’ve chosen the less invasive action of increasing my medication for migraines. Sometimes the medication is not so effective that the only solution is a drink of Coke or Pepsi. Don’t ask me why it works but it does.

Let’s move on to more happier events in life. Mr Zebrakat has been awarded a Fellow in the construction industry. There was an award ceremony in London and I couldn’t be more prouder of him. He deserves the acknowledgement for his contribution to the construction industry

Whilst in London, we went to the London Docklands Museum. I will do a separate blog for that visit.

Although going out is a challenge, Mr Zebrakat & I have adapted to my needs. Only now, did I had realise what precautions we actually take to make travel more accessible for me. It’s become the norm for us but there is a degree of planning & organisation. You learn to adapt very quickly and I’m sure it’s the same for any illness.

The story continues……….

Weekly Blog No 126 – Cancer Update

This was my Facebook update for family and friends.

Unfortunately I’ve been a little quiet recently as I’ve been suffering with abdomen pain and a suspected partial bowel obstruction. I had a Pet Scan beginning of May, it was first one since last year. I did have a couple of CT scans in Feb, which revealed cancer in the abdomen. Well yesterday I went to the RF to discuss my current problems and the results from the Pet Scan. Although it was a great appointment with my Oncologist, he did kindly tell me “I was a complicated case”, my reply was “I did tell you I wasn’t straightforward”.

Now Im going to tell you the findings from the Pet Scan, I have cancer in the abdomen in various places, however there is something of concern on the left side were I have intense pain. Furthermore, I have additional cancer spread on the liver. Subsequently I will have CT’s to the thorax, abdomen, pelvis and liver in the next couple of days. The Oncologist will have a multi discipline team meeting to discuss my case. I may have to have additional tests before I see him again mid June. The proposal is a tablet form of chemo therapy or a clinical trial of Peptide Receptor Radionuclide Therapy. This will be discussed in more detail, once he sees me again and I will explain it more to you.

My thoughts: Something has to done about the continuous progression, I do find that I’m constantly saying that I have progression to you all in my updates, however the fight goes on. Obviously my 4th surgery last Nov didn’t buy me time like I initially thought, hey ho there you go. If I have this chemo, there’s some nasty side effects that I don’t want to experience and PRRT is the last resort treatment for my cancer. However PRRT can slow down progression so its definitely a bonus. I will keep doing what I’ve been doing and that is trying to enjoy life. Life is so precious.

Sorry I haven’t done personal messages but there’s too many people to do and easier this way. 😍

Love to you all. ❤️

Weekly Blog No 121 – Mediterranean Cruise

@msccruises

@msccruises

Mr Zebrakat & I have just been on a mediterranean cruise. It was my birthday gift from Mr Zebrakat and we celebrated on the cruise 5 years since my cancer diagnosis.

If you are a sun worshipper, I wouldn’t recommend the month of March to do a mediterranean cruise. Although we were able to wear short sleeves, it was quiet windy and did rain a couple of days.

Mr Zebrakat chose MSC Cruises after we had watched an episode of Jane MacDonalds cruise Channel 5 programme. The cruise was an eight day cruise embarking & disembarking in Barcelona, Spain, however you could have embarked/disembarked at any of the ports. This is the first cruise we have been on were all the passengers have not all embarked and disembarked at the same location. The cruise involved 4 countries in 8 days and 5 ports.

This was the itinerary:

Day 1 – Barcelona, Spain

Barcelona the capital of Catalonia, the best port in Europe to discover the wonders of this vibrant region of Spain. Barcelona is one of the largest cities of the mediterranean coast. Establish the history of Gaudi and Picasso. Immerse yourself in the medieval and gothic architecture.

Day 2 – Marseille, France

Marseille the typical vielle ville (old town) of the French Riviera. Enjoy the old port, Palau’s du Pharo or Notre Dame de la Garde.

Day 3 – Genoa, Italy

This Mediterranean port will amaze you with elegant architecture from the 17th & 18th centuries. Take in the magnificent Cathedral of SAN Lorenzo consecrated by Pope Gelasius 11 in 1118 and completed in the 14th Century.

Day 4 – Civitavecchia, Italy

The port of Civitavecchi is one of the largest in Italy. Amongst the most important monuments to visit is the Fort Michelangelo, built by Bramante in the 16th century, the ancient walls of the old port and the fountain in travertine marble by Vanvitelli. There is a host of bars and restaurants for a taste of seafood cuisine.

Day 5 – Palermo, Italy

The perfect chance to visit the regional capital of Sicily. The port of Palermo displays of Norman art and architecture, Baroque churches and medieval streets.

Day 6 – Valletta, Malta

The fortress city and the capital city of Malta. The city has historical and artistic heritage and over 300 monuments. Beautiful architecture with colourful balconies to houses.

Day 7 – At Sea

Day 8 – Barcelona, Spain

Mr Zebrakat and I only went off the cruise ship in Valletta, which I will blog about next week.

A total of 1798 nautical miles was achieved on the MSC Meravilglia ship. 19 floors, approx 4400 passengers and 1500 crew. 19 passenger lifts, a shopping promenade, thermal spa, water park and the list is endless.

Here is a few photos of the ship.