Image credit net cancer org.
It’s my 4th Net Cancer Day since my diagnosis. 3 – 1/2 years ago. My personal goal was to live for 5 years going on statistics that I had read.
Since my diagnosis of net cancer aka carcinoid cancer, I have seen a bigger awareness of this specific cancer. Consequently, patients, carers givers, medical professionals and organisations are proactively spreading the word and creating more awareness. I believe social media has been the biggest influence in order to drive awareness. I have personally learnt a lot from a social media groups and have been able to share my knowledge too from my own personal expereince. We have continued to be proactive in driving awareness and believe me no action is deemed too small.
As many of you know, I have cancer in the abdominal and the liver but this week I learnt from my latest Ga68 scan that there is no further metastasis spread. I have to say that’s such a relief to hear, especially as I was having problems with my spine & head. I suspected bone metastasis due to my pain problems but it was confirmed that I don’t have bone mets. I do believe 120mg of Lantreotide every 28 days has been a huge contribution to enable my Oncologist to say such words “you are stable”.
I have a further appointment with my Neurologist in about 10 days, to hopefully shed some light as to what is going on with my spine/head etc. Although I feel a huge relief, there is still the fact that I have other symptoms and issues that need to be addressed in order to achieve optimum health.
I would like to personally thank all the patients and medical professionals that have made my Net Cancer journey a lot easier. Without you there would be no journey. ❤