Weekly Blog No 126 – Cancer Update

This was my Facebook update for family and friends.

Unfortunately I’ve been a little quiet recently as I’ve been suffering with abdomen pain and a suspected partial bowel obstruction. I had a Pet Scan beginning of May, it was first one since last year. I did have a couple of CT scans in Feb, which revealed cancer in the abdomen. Well yesterday I went to the RF to discuss my current problems and the results from the Pet Scan. Although it was a great appointment with my Oncologist, he did kindly tell me “I was a complicated case”, my reply was “I did tell you I wasn’t straightforward”.

Now Im going to tell you the findings from the Pet Scan, I have cancer in the abdomen in various places, however there is something of concern on the left side were I have intense pain. Furthermore, I have additional cancer spread on the liver. Subsequently I will have CT’s to the thorax, abdomen, pelvis and liver in the next couple of days. The Oncologist will have a multi discipline team meeting to discuss my case. I may have to have additional tests before I see him again mid June. The proposal is a tablet form of chemo therapy or a clinical trial of Peptide Receptor Radionuclide Therapy. This will be discussed in more detail, once he sees me again and I will explain it more to you.

My thoughts: Something has to done about the continuous progression, I do find that I’m constantly saying that I have progression to you all in my updates, however the fight goes on. Obviously my 4th surgery last Nov didn’t buy me time like I initially thought, hey ho there you go. If I have this chemo, there’s some nasty side effects that I don’t want to experience and PRRT is the last resort treatment for my cancer. However PRRT can slow down progression so its definitely a bonus. I will keep doing what I’ve been doing and that is trying to enjoy life. Life is so precious.

Sorry I haven’t done personal messages but there’s too many people to do and easier this way. 😍

Love to you all. ❤️

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Weekly Blog No 125 – I’ll Be Back Soon.

Happy Friday Everyone.

I’m just having some medical issues. My medical team and I working together trying to resolve the unexpected problems

Weekly Blog No 124 – A Hard Week/Death


This week has been a hard week on so many levels. For a while, I have been experiencing problems since my last surgery in Nov. I suspect I have a partial bowel obstruction. I knew at some point I would get another bowel obstruction from either scar tissue or dandelions (tumours) but just not this soon. My recent bloods have recently shown high and low level readings, therefore my bloods etc were retested on Friday.

When speaking to my GP/FP about the situation he said “the surgeon wouldn’t operate again”. It’s not the first time I’ve heard such words and I’ve defined the odds. Nevertheless I think my surgeon would as he appreciates complicated cases and also the challenge. In reality the GP/FP and his thought process is right because I’m sure my abdomen looks like a plate of spaghetti with a few dandelions(tumours) thrown in for a pop of colour.

You all know my last op in November was not very pleasant for me and I am in double digits were op’s are concerned. I’m still super sensitive were any medical treatment is given to me, which involves a degree of pain. This week, I had hip injections to eliminate pain and boy did it hurt. I came out of the medical facility saying to Mr Zebrakat “why do I put myself through this”. The answer to my own question is, I have no choice. If I want to sleep at night, it has to be preformed. I’m also waiting for my surgeon/team to return my call, regarding a course of appropriate action to be taken. Let’s see what develops over the next couple of weeks. In the meantime, I have my PET scan the beginning of May.

Since the last op, my abdomin feels slightly distorted and even the open wounds have healed larger than a normal scar line. At this moment, I don’t necessary like what I see, nevertheless they are survival scars and no one is going to see them. After all, it doesn’t really effect me as they are just scars at the end of the day. Furthermore the scars are not on show for all to see, therefore I do embrace them as survival.

On a positive note, I have lost a lot of weight since my last op (that could be considered as good or bad thing). Now to me its a blessing in disguise unless told otherwise as I’m going back to my original shape. Obviously when the undetected cancer was growing, my body was just inflating from hormones secreted from the dandelions. Even back in the day my physical trainer from the army would see me twice a week to torture me. He could never understand why I wasn’t losing weight from the exercise regime I was carrying out. It was always an unresolved puzzle and I consequently learned to live with the matter of contention. Regardless of feeling ill at times, people nowadays can’t believe how good I look. They are seeing a slimmer me and I’m seeing a sick person. The biggest thing they notice is the weight loss, in spite of me living with ongoing daily symptoms. Nowadays my clothes can be purchased off the rack without even having tried them on. It is an excellent feeling whether you are sick or not.

This week, I was informed of two friends passing away from cancer. Both suffered from different cancers, yet they were both so brave in their own right. It’s been rough week emotionaly for me and their families. One of my friends, even though we had different cancers we had similar symptoms in some respects. It was like I was opening up the suppressed emotions of death. Don’t get me wrong I am realistic, I knew one day that I would die of the disease, still I was living in the moment. I think these emotions were brought forward due to my friends passing from the disease and me dealing with more symptoms with no possible outcome but death in time.

No one wants to be faced with death. I’ve heard the phase used before, we could all die tomorrow crossing the road etc etc still bottom line is that its unexpected, with cancer you’re dying slowing and not all of a sudden. Yes we all know we are going to die one day, however we don’t know when or how, it’s the unknown. Please don’t be alarmed I don’t think I’m there yet, in spite of medical aid, I know deep down I’ve exhausted that. Therefore organs have to start failing to work efficiently. I could use another one of my nine lives and live for years, who knows. Under the circumstances it would be normal to think this way. I’m sure I will again and again, nevertheless it’s gave me a kick in the butt to get my paperwork in order. I did have anything in order in Canada but I haven’t completed everything in the U.K.

Cancer and death thoughts are always going to dovetail with one and another. Even patients who are cured with cancer will have had these thoughts somewhere throughout their journey. People who haven’t had cancer and who know of someone who’s had cancer will immediately think death. Bottom line the thoughts are unavoidable.

Weekly Blog No 121 – Mediterranean Cruise

@msccruises

@msccruises

Mr Zebrakat & I have just been on a mediterranean cruise. It was my birthday gift from Mr Zebrakat and we celebrated on the cruise 5 years since my cancer diagnosis.

If you are a sun worshipper, I wouldn’t recommend the month of March to do a mediterranean cruise. Although we were able to wear short sleeves, it was quiet windy and did rain a couple of days.

Mr Zebrakat chose MSC Cruises after we had watched an episode of Jane MacDonalds cruise Channel 5 programme. The cruise was an eight day cruise embarking & disembarking in Barcelona, Spain, however you could have embarked/disembarked at any of the ports. This is the first cruise we have been on were all the passengers have not all embarked and disembarked at the same location. The cruise involved 4 countries in 8 days and 5 ports.

This was the itinerary:

Day 1 – Barcelona, Spain

Barcelona the capital of Catalonia, the best port in Europe to discover the wonders of this vibrant region of Spain. Barcelona is one of the largest cities of the mediterranean coast. Establish the history of Gaudi and Picasso. Immerse yourself in the medieval and gothic architecture.

Day 2 – Marseille, France

Marseille the typical vielle ville (old town) of the French Riviera. Enjoy the old port, Palau’s du Pharo or Notre Dame de la Garde.

Day 3 – Genoa, Italy

This Mediterranean port will amaze you with elegant architecture from the 17th & 18th centuries. Take in the magnificent Cathedral of SAN Lorenzo consecrated by Pope Gelasius 11 in 1118 and completed in the 14th Century.

Day 4 – Civitavecchia, Italy

The port of Civitavecchi is one of the largest in Italy. Amongst the most important monuments to visit is the Fort Michelangelo, built by Bramante in the 16th century, the ancient walls of the old port and the fountain in travertine marble by Vanvitelli. There is a host of bars and restaurants for a taste of seafood cuisine.

Day 5 – Palermo, Italy

The perfect chance to visit the regional capital of Sicily. The port of Palermo displays of Norman art and architecture, Baroque churches and medieval streets.

Day 6 – Valletta, Malta

The fortress city and the capital city of Malta. The city has historical and artistic heritage and over 300 monuments. Beautiful architecture with colourful balconies to houses.

Day 7 – At Sea

Day 8 – Barcelona, Spain

Mr Zebrakat and I only went off the cruise ship in Valletta, which I will blog about next week.

A total of 1798 nautical miles was achieved on the MSC Meravilglia ship. 19 floors, approx 4400 passengers and 1500 crew. 19 passenger lifts, a shopping promenade, thermal spa, water park and the list is endless.

Here is a few photos of the ship.

Weekly Blog No 118 – Winter Olympics 2018

This time 4 years ago, I was watching the Sochi, Russia, Winter Olympics in Canada. This year I’m watching the Pyeongchang, Korea, Winter Olympics in the United Kingdom.

Great Britain are not as fortunate in the Winter Olympics for medals as they are blessed in the Summer Olympics.

In Sochi 2014, Great Britain won 4 medals in total. One gold, one silver and 2 bronze.

Liz Yarnold – Gold – Skeleton

Men’s Team – Silver – Curling

Woman’s Team – Bronze Curling

Jenny Jones – Bronze – Snowboarding

I read in the media at the beginning of the Olympics, that Great Britain’s goal was to win 5 medals. I’m glad to report as of today, only day 8 of the Winter Olympics we have won 4 medals. One gold and 3 bronze.

Liz Yarnold – Gold – Skeleton

Laura Deas – Bronze – Skeleton

Don Parsons – Bronze – Skeleton

Izzy Atkin – Bronze – Skis Slopestyle

Congrats to Liz Yarnold for achieving her second consecutive gold medal in the skeleton. Hopefully Team GB will exceed their goal of 5 medals in this years Winter Olympics.

Weekly Blog No 117 – Suffragettes

Some historical facts about suffragette movement

Suffragette

A woman seeking a right to vote through organised protest.

Suffragettes campaigned to change the law, to grant women the right to vote. On the 6th February 2018, marked a 100 years since women were given the right to vote in the United Kingdom. Although the legalisation was passed in 1918, it was only for women over the age of 30 who could actually vote if they met the minimum property qualifications or were married to a man who did.

Not all suffragists were women, another term used for man and women. George Lansbury resigned as a MP, from the House of Commons over the issue. George was arrested at a suffragette rally in 1913 after speaking in support.

Suffragettes were imprisoned for minor offences for instance protesting, resisting arrest or smashing a window.

The suffragettes in prison went on hunger strike and were force fed, which was invasive, demeaning and dangerous.

The Royal Albert Hall, London was hired for suffragette rallies between 1908 – 2013. They were also the first group to be banned from the Hall due to disruption and costly damage.

Lady Nancy Astor was the first woman to stand for Parliament. The suffragettes were shocked that the first woman elected for parliament played no part in the suffragette movement. She should have won them round by fighting for woman causes.

Weekly Blog No 116 – Goodbye 40’s and Hello 50’s.

I had previously mentioned in a blog that when I was diagnosed with cancer, I put out to the universe, to please let me reach my 50th Birthday. I’m glad to report, I made it. I do believe its a combination of a positive attitude and gaining a knowledge on Carcinoid Cancer.

The last decade was a mixture of excitement and emotions. We moved to Canada experiencing everything Canadian. Then I suffered with my spine and endured 4 surgeries. To add to the emotions, I was diagnosed with a rare cancer. Yet my husband & I continued to enjoy Canadian life with such amazing friends. 3 Cancer ops later it was time to go home to be nearer to my family in UK and Ireland. We have no regrets but my heart is still in Canada. Therefore goodbye to my forties and hello to my fifties.

Firstly I would like to thank everyone who has been telling me I look mid to late 30s. I have to thank my parents Irish genes for that one because its nothing I have done. I haven’t had any invasive beauty treatments or used any special beauty products.

Last week, I was fortunate to have friends come and see me throughout the week. We celebrated with bucks frizz, coffee and tea. There was chatting over a variety of cakes and fresh fruit. I do love a girly gatherings because there is no subject out of bounds and the room is always full of giggles.

Saturday was my birthday and I was showered with birthday cards. Every available surface was covered with cards of love. I got balloons full of helium floated in euphoria. I had flower arrangements, salt and peppered around my house. I was sprinkled with gifts of generosity. The house was full of bliss and kindness.

I’m so so grateful to everyone who made my birthday so special. My 50th Birthday is one I shall always remember. Thank you.

Love to you all. ❤️