Weekly Blog No 111 – Post Op Update

I have just been discharged from hospital after being in for 17 days. Ive had major surgery, right hemi-colectomy, omentectomy and bilateral salpingo oophrectomy due to the pesky dandelions (tumours) again. I’m not cancer free, it’s not a cure, It was purely for quality of life.

On a good note, I’m no longer in the pain that i was experiencing prior to the op, however there is somewhat post op pain and uncomfortableness. There was a few tumours taken out, nevertheless the biggest tumour being 3lb in weight(size of a grapefruit), explaining all the excruciating pre op pain due to its size. I can’t say it’s been easy this time around, after this particular op, I had 2 days in ICU then onto the high dependency ward for 6 days followed by a general ward. I was plagued with pain, vomiting and other symptoms. I will pretty much hesitate to ever go for op no 11. I believe I just coped with all the previous ops so well so I thought I would just bounce back again. In some respects I have in a funny kind of way.

I’ve since had the pathology report as suspected it was tumour involvement in the right ovary, stomach membrane and bowels. I knew something was wrong for a while and have questioned the medical data that was put before me. I will continue to push when I need too. I know a cat has 9 lives but I’m pretty dam sure I’ve exhausted nearly all of mine.

I have a big birthday in a couple months and I will endeavour to celebrate in one way or another. When diagnosed nearly 5 years ago, I had secretly put out to the universe, please let me reach this special birthday and it seems my wish has been granted. Thank you universe.

I need now to rest my weary eyes and turn off the hospital alarm clock, of observations and medication etc. I will be having dIstrict nursing in daily to attend to my wound. Furthermore follow up appoints soon and oncology scans in about 3 months.

I know I’ve said this before, and you’re most probably bored of me expressing it again but I won’t ever apologise for my gratitude for my lovely husband. He has been an absolute diamond and there is no words for his ever ending qualities. Without him I’m sure that I couldn’t handle what is put before me with such strength and determination. Thank you J and I love you dearly.

I would like to personally thank people(mainly family) in the know for my cards, flowers, goodie bags, messages and for feeding my lovely husband. Your kindness and generosity will not be forgotten by us both. ❤️

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Weekly Blog No 108 – Cancer Update 


Cancer Update.
Last week I seen the surgeon in London and he further agrees that I need surgery. The goal is another bowel resection and ovary removal. If he feels a resection is not viable then an external bag is the only option. The surgery is mid Nov because we are trying to get my blood pressure under control. (Cancer related) I did scare them a little with a heart rate 115 and repeat readings not much different. He then sent me to pre admission today to avoid additional travel.

 I think I had a full M. O.T. including swabs, bloods, ecg etc etc. Once the nurses had finished I was sent to the anaesthetist who was also very lovely and fully aware of the problems my cancer has caused. Therefore as an extra precaution I will go in a day early for special meds and after surgery I will go into a high dependency unit or icu for at least 24 hrs. Overall it was a successful day.
Roll on operation freedom. 🤞<<<<
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Weekly Blog 106 – Cancer Update 


Cancer Update 
On Monday I went to see my Oncologist, following recent tests and a scan. He confirmed that I have a tumour on my right ovary possibly a small one on the left too. (I’ve been questioning my ovaries for a couple of years now). I also have disease in my bowel. I’m been suffering terrible pain due to the bowel and right ovary, I’m on morphine and liquid morphine. However I feel a sense of relief that my concerns have been vindicated. The proposal is ileostomy(bowel to external bag) and remove my ovaries. 

I will still have cancer in other areas, nevertheless this is to eliminate pain and give me a quality of life. Morphine in a cancer patient always represents end of life to me, therefore at some point it’s going to be needed so I don’t want to use all my options at this stage. If I have the op, I hope to come off the morphine until it is required again. 

He’s going to discuss my case with a very experienced surgeon this Wednesday as he feels my case is quiet complex. (I’ve had 3 cancer surgeries already). The surgeon will then send me an appointment to see him and hopefully give me an operation date. 

How do I feel:-

I’m ok, pleased that my concerns have finally been acknowledged. I want to get off morphine and hopefully be somewhat pain free. It’s no fun being in pain all the time with everything else going on. Yes the bag is not a great option but I will take it, if it eliminates pain and gives me more freedom.  

Next week, I’m seeing an ENT Consultant because I appear to have developed a hoarse voice. Now I know this might be attractive to some people, a husky voice but it’s so random. My Oncologist asked my GP to arrange it locally. His concern is its cancer because it’s been going on for a few months, therefore he wants to eradicate the possibility. I hope not, enough is enough. Should it be I will deal with it head on as always. 

Mr Zebrakat as per normal, is with me on every appointment. I would be lost without his continuous support. Thank you Mr Zebrakat for absolutely everything that you do. ❤️

Love to you all 😘x including my Oncologist 


PS I’m just working on Part 2, Black Country Living Museum.  The post will be on by Saturday. 

Weekly Blog No 100 – Cancer Update. 

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Cancer Update.



Late January my GP/Family Physcian was getting concerned with me, regarding my symptoms. The Royal Free Hospital, London, UK requested some additional tests including the most advanced scan for my cancer. I have personally been struggling at times, when I have a bad day, I rest and when I have a good day I make the most of it. My body was certainly telling me my cancer had advanced but I had to have medical procedures to confirm that. Today, I went to the RFH for the results and the news was not great.

There was more progression of cancer both in my abdomen and liver.  Was I shocked, no I wasn’t because I knew. What was my reaction, well I smiled because now there was data to represent my symptoms. Weird reaction, I know but I’ve been here at least 5 times before, it’s old hat.  What happens now, my Oncologist wants me to have additional scans to examine the growth in more detail on my abdomen and liver, which is supposed to be in the next 2-4 weeks. However my scan is in 4 weeks with additional blood work. That gives him 2 weeks to discuss my case with other Consultants before seeing him again. He has proposed 3 treatment options but I won’t go into that yet until a final decision has been made. In the meantime, guess what, I have more meds, let’s just add a few more to my rather big collection.

I’m going to continue life the best I can and with no boundaries. I will update you in July when I have more news. I would like to thank the people who continuously support both me & Mr ZebraKat  ❤️

Weekly Blog No 96 – Life Continues

I thought it’s been a while and I should give you an update and elaborate what I’ve been doing in the mean time. 

I’ve been missing in action for a while now because of the challenges of carcinoid cancer. It’s been an  ongoing obstabcle course and I’ve had to climb over walls, swing on ropes and jump through hoops. Only, my adventure is not the wonderful experience you would imagine. 

My new Family Physician has been excellent and on the ball referring me when there has been concerns and there haven’t been many. I had scans, tests and Specialist appointments. On one appointment my medication intake increased a further 5 different meds due to my symptoms. The medical hamster wheel never stops for me.  

Next week I have an endoscopy and the following week my GA68 cancer scan. My tumour marker blood tests that have always remained normal even though, I’ve had 3 cancer ops. My tumour marker result has done a long jump out of normal range with a personal best and doubled within 6 months. Well done cancer, what are you telling me now.

Here’s comes the honestly part. There has been occasions were I have thought is this my downward spiral. Do I seriously need to get my life in order before I decline anymore. My life was in complete order in Canada but isn’t so complete in the UK. It’s something that I need to address. I have ideas but it needs to be down on paper.  

I’m not the person I was and my life has changed so much. I miss work but I do understand why I can’t work. Furthermore I’m don’t have the freedom I once had but I’m also grateful for the freedom I do have. Going anywhere is a challenge, yet you have to try to get to places if you can and Mr Zebrakat is very supportive and never a whinge is heard.

I’m not a crier as a rule, however I did end up crying to Mr Zebrakat a few weeks ago when nothing would take the pain away. It was a Sunday too, so not everyone was accessible for assistance. On the Monday my butt dart nurse saw I was out of sorts and crossed the procedure line to get me assistance. A box of chocolates is in the waiting for my next visit. Thank you so much to my nurse and her diligence.

You do start to question things, for instance, is this it, or if your deemed to have an extended life, how can you possibly maintain symptoms like this every single day. I now understand why people want to throw in the towel. Trust me it’s very easy to comment on these things, when you haven’t physically experienced it yourself. Therefore please be mindful when discussing people’s health issues. I have personally made comments on people’s health in the past, saying I don’t understand why people don’t try more or I don’t understand why they are doing that blah blah blah. Speak to the person and get their prospective on the situation.   

Yes it’s wonderful having a life but no one wants to be feeling horrible everyday. We have all had a viral infection at some point and you feel so terrible. Imagine that feeling most days, it’s the only way I can explain some of the symptoms/situations. Don’t worry, I’m not giving up and my Specialist is working hard to control my symptoms.Thank you Prof C.  The reality is that I may look ok but truth is my life is tormented by my cancer. 

My priorities have changed in life, what may have been my 1 – 5 year goals have immediately become my current goals. I’ve been fighting this for 4 years on Mothers Days (UK), which is a wonderful achievement. Even longer if you count the years it was growing inside me before being diagnosed. 

I will continue to fight and challenge my body. I will keep reading and thank you to Auntie P for the continous supply of reading material. I will be lost in Victorian times for a while. Thank you to K for keeping me up to date in showbiz gossip.  

The house renovation plans are nearly completed for Local Authority submission, well done Mr Zebrakat. Roll on brick dust. 

The garden is now missing a silver birch tree, conifers and  a vine. Hello, fresly painted bird table and proposed space for veggie boxes.  I have sowed some seeds indoor seeds for bedding plants and veggies. A new skill for me and I’ve been learning from others and a big thank to Lady T for the beginners guide. 

I’ve also being working on Mr Zebrakat family tree and mine at times. His is my priorty, I’ve rechecked the facts that I have gathered to ensure that I’m following the right line. It’s amazing how people attach your family members to thier family tree. Clearly assuming that their family member is married to yours.You can’t make assumptions, you have to get the certificates to double check the info provided is correct. The Scottish certificates tend to give a little more info, like marriage date of parents and addresses making the trial a little easier, although I will be crossing over to Ireland now. I know with my family tree, Ireland is a little harder to trace and I believe a lot of records were destroyed by the British. However on a good note, Mr Zebrakat was able to reconnect with a 1st cousin through my research. #happydays.

Althrough i’m problematic times and I may question things, I’m still proactive in one way or another. I would to thank Mr Zebrakat, my family and friends for keeping me going, you know who you are. #specialpeople. 

Weekly Blog No 95 – French Bistro Evening 

imageLocally we stumbled upon a quaint little café with a friendly atmosphere. Every time we have visited the café, you are made to feel welcome and presented with gratifying food & drinks. When ordering a sandwich of your choice, you are presented with a side order of homemade coleslaw and baked crisps.  As I’m not a lover of coleslaw, I was surprised to be delighted by the flavour and could quiet happily eat a bowl on its own. I don’t know what the secret ingredient is, nevertheless they have definitely won me over.

Usually after my cancer injection, Mr Zebrakat and I treat ourselves to a spot of breakfast or early lunch. In January, we spotted that the café did theme night menus. In January, it was a Scottish theme menu, just after Burns Night but we didn’t go as we had other plans.  We decided to go to the next one in February, which was French Bistro. We paid our deposit unsure if we would attend due to me not being so well lately, however at least our place was reserved. Yesterday was ohh la la evening, so I made sure I got plenty of rest during the day.

When we approached the space we were enriched with French music, bunting of French flags, white tablecloth & blue & red confetti laid tables and finally dressed with a bulb of garlic.  We were able to bring with us a bottle of wine as the premises doesn’t hold a liquor licence. Here is the food menu.

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 The shared oven baked Camembert was amazing.

We both had the pan poached garlic mushrooms

Followed by the rustic French onion soup, Mr Zebrakat had the honey glazed duck a la orange and I had the coq au vin.

Then onto dessert, which was a selection of French style desserts

The evening was truly amazing with a great atmosphere. The food was impeccable and the service outstanding. We are going to try another theme night very soon.

 

Photo Credit : Food photos off Facebook page of the café.